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Little girl and mother part of awareness campaign on “The Today Show” for rare, often misdiagnosed disease affecting young children
News of a child’s serious illness can cause any parent to feel a sense of despair and helplessness. But one mother is turning that diagnosis into a mission to raise awareness of a rare disease. She says too many children are going misdiagnosed and funding must be raised to find a cure.
“Charlie was born on April 21st, 2009 at a very healthy 9 lb. 6 oz., she was a wonderful baby,” said mom Amber Trenaman. The Trenaman family lives in the Tofield area and runs a locally owned and operated bu-siness, T3 Water Hauling Ltd., just off Wye Road and R.R. 202.